(Saturday, February 20, 2010)
In the last 7 days, Patra and I have made the 30 mile drive from our home to Moffitt every day. So about 420 miles and almost every day we came home through the 6:00 traffic – at least 14 hours in the car this week.
Tuesday, Wednesday and Thursday were basically 10 hour days at the hospital with procedures, tests, consultations and injections. I quickly became a fan of my catheter. It saved me a lot of shots and pokes. Wednesday, they were able to collect 4 million white blood cells which are now safely frozen and awaiting transplantation into my body next Friday.
Thursday was not a good day. Because they were able to collect all of the needed stem cells on Wednesday, Thursday was to be a day off. We should have known early, it was not going to be a good day.
Patra fixed me breakfast (you have to understand that I love all meals but especially breakfast). I sat in the chair and just looked at it. I had absolutely no appetite. I was able to eat one bite of toast and that was it. A few minutes later, I was in the bathroom and almost passed out. I was dehydrated and began to sweat profusely.
Dehydration is a recognized problem with amyloidosis, and the powerful narcotic which enabled me to produce stem cells very rapidly may have played a part. Just going through the procedures this week may have contributed to it. Nausea didn’t help.
Patra called Moffitt and after a brief discussion about where to go, it was decided I should go to Moffitt.
That’s when the NASCAR driver in my wife came out. She was good. (Please understand that I am not being critical of her driving. We both agreed that we needed to get there quickly – literally we were in one “Accord.”)
I was not able to open my eyes (I’m not sure I would have wanted to) but I could tell she was drafting well, cornering sharply and may have bumped a few cars that thought they were in the lead. Looks like I’m married to “Danica Patra.”
Moffitt took immediate steps to remedy the situation. I received a I.V. fluid and medication to help with the nausea. We were released about 6:00 p.m. It may have been the drugs, but when we got to the car, it looked like it had been painted with a big godaddy.com logo on the hood.
Yesterday (Friday) we went back for a dressing change for my catheter site, lab work, and a check of my fluid levels.
In addition to the catheter, I wish they would install a dip stick.
In the last 7 days, Patra and I have made the 30 mile drive from our home to Moffitt every day. So about 420 miles and almost every day we came home through the 6:00 traffic – at least 14 hours in the car this week.
Tuesday, Wednesday and Thursday were basically 10 hour days at the hospital with procedures, tests, consultations and injections. I quickly became a fan of my catheter. It saved me a lot of shots and pokes. Wednesday, they were able to collect 4 million white blood cells which are now safely frozen and awaiting transplantation into my body next Friday.
Thursday was not a good day. Because they were able to collect all of the needed stem cells on Wednesday, Thursday was to be a day off. We should have known early, it was not going to be a good day.
Patra fixed me breakfast (you have to understand that I love all meals but especially breakfast). I sat in the chair and just looked at it. I had absolutely no appetite. I was able to eat one bite of toast and that was it. A few minutes later, I was in the bathroom and almost passed out. I was dehydrated and began to sweat profusely.
Dehydration is a recognized problem with amyloidosis, and the powerful narcotic which enabled me to produce stem cells very rapidly may have played a part. Just going through the procedures this week may have contributed to it. Nausea didn’t help.
Patra called Moffitt and after a brief discussion about where to go, it was decided I should go to Moffitt.
That’s when the NASCAR driver in my wife came out. She was good. (Please understand that I am not being critical of her driving. We both agreed that we needed to get there quickly – literally we were in one “Accord.”)
I was not able to open my eyes (I’m not sure I would have wanted to) but I could tell she was drafting well, cornering sharply and may have bumped a few cars that thought they were in the lead. Looks like I’m married to “Danica Patra.”
Moffitt took immediate steps to remedy the situation. I received a I.V. fluid and medication to help with the nausea. We were released about 6:00 p.m. It may have been the drugs, but when we got to the car, it looked like it had been painted with a big godaddy.com logo on the hood.
Yesterday (Friday) we went back for a dressing change for my catheter site, lab work, and a check of my fluid levels.
In addition to the catheter, I wish they would install a dip stick.
Comments
Take care Bugg family; you are in our hearts & prayers.
Ted & Carol
This too shall pass.
We look forward to your return...
Philippians 4: 4-9,13,19
Love & prayers,
Ruthie
God Bless
Mike and Pam
Romans 8:28